Interviews with Parents and Guardians with Disabled Children - Case Study Example

APPENDICES Appendix Ethics and Governance Approval NHS Research South East London SE London Strategic Health ity Lower Marsh, Waterloo, SE1 7NT Date: TITLE: A qualitative study into parents’ experiences, views, and opinions about services offered in Accident and Emergency (A&E) settings for children with learning disabilities. Dear Sir/Madam, My name is ………………………………………….I am a student at South Bank University, undertaking my final year in a Nursing and Social Work degree course. In order to fully complete the programme my course requires that I undertake a research proposal focusing on parents’ experiences, views, and opinions about services offered in Accident and Emergency (A&E) settings for their children, who have learning disabilities, during admission and discharged. The research is qualitative study, utilizing a phenomenological approach of semi-structured interviews of approximately 15-30 minutes duration. The chosen sampling method is convenience sample, as I will approach the participants on the ward (A&E /children emergency setting). The University aim of the course unit intends Joint practice students like my self to develop research skills and awareness that will inform our future practice, and potentially improve the quality of life to parent/carer’s with disabled child that access A&E hospital settings. It will also allow us to be more valuable and effective practitioners. The research is to last for 12 weeks and will take no longer than this time scale. Additionally, the project is expected to reflect the views, opinions and lived experience of the participants about the service they are currently receiving and as well as past services offered to them. (N=10 participants will be drawn from St Thomas and St Guys Hospital in London Borough of Lambeth and the participants must be parents and guardians looking after disabled children with either mild to moderate learning disabilities. The research is not funded. It is under the supervision of a senior lecturer from Research in Practice named……………………. All information that is gathered from this study will be treated with the utmost confidentiality under data act protocols. I would therefore be grateful if you could support me in carrying out this research independently. Any additional support or assistance that facilitates the research will also be greatly appreciated. I have enclosed a copy of a letter of approval from the London Borough of Lambeth Ethics department acknowledging their attentiveness and approval of this project and an information sheet detailing the project. If you have any information or questions regarding this research please do not hesitate to contact me at 07947332523. Thank you for your time and support Yours faithfully Christina. Elugbaiye BSc Student Nurse/Social Worker Enc: Research Information Sheet Appendix 2: RESEARCH NFORMATION London South Bank University School of Health and Social care Title of the study “A qualitative study into parents’ experiences, views, and opinions about services offered in Accident and Emergency (A&E) settings for children with learning disabilities”. Who is carrying out the research? My name is …………………………………………………….. I am a third year Joint Practice student training at L SB University. I am doing a research proposal in regards to parents looking and caring for a disabled child lived and the provision of services offered to them in Accident and Emergency Hospital setting in St Thomas and St Guy’s hospital in the London Borough of Lambeth. What will I have to do? I will be approaching parents and guardians with disabled children on the wards to participate in one-to-one, 15-30 minute interviews on this topic. The face to face interviews will take place with individuals (looking after and caring for a learning disabled child), and my self. What are the benefits of participating? The study will be helpful to policy makers in the provision of services for parent and guardians in providing adequate support and needs to disabled children and their families within the London Borough of Lambeth. Yet, the findings of this study will build up a framework on which to distinguish and improve the services offered to people caring for disabled children and aid the health staff in an A&E hospital setting. Appendix 3: Covering letter to senior practitioners: Hospital, A&E and Children’s emergency Ward Manager’s St Thomas Hospital Westminster Bridge Road London SE1 7EH Tel: 020 7188 7188 CC; St Guys Hospital Great Maze Pond London SE1 9RT Tel: 020 7188 7188. Date: Dear RE: “A qualitative study into parents’ experiences, views, and opinions about services offered in Accident and Emergency (A&E) setting for children with learning disabilities”. My name is....................................................... I am a final year student from London S B University, Faculty of....................................... As part of my course requirement, I am undertaking a research proposal to gain insight to parent and guardian lived experiences, views and opinions about services offered to their child with a learning disability during admission in an A&E emergency setting. My research design methodology and sampling requires me to call into your ward and approach and interview parents. All information that is gathered from this study will be treated with the utmost confidentiality under data act protocols. In view of this, I would like to gain your consent and permission to come on the ward to carry out the research. The research time scale is approximately 12 weeks. I would appreciate it if you could contact me at 07947332523 or via email elugbaic@lsbu.ac.uk , whatever is more convenient for you, to inform me when possible to visit or to carry out the research. Your support will be much appreciated and I look forward to hearing from you soon. Yours faithfully, Chrisitna-Elugbaiye Appendix 4: Briefing Speech “Hi. My name is .........................and I am a final year student currently studying Nursing and Social work BSc (HONS) at LSBU. I am carrying out a research proposal as part of the course requirement. My chosen topic is to investigate parents’ lived experiences, views and opinions about services offered to their children with a learning disability in A&E and children’s service emergency settings, either during admission or discharge. And therefore I need your help as a participant. I will go through and ask you a few questions, using an interview guide so I don’t drift away from the topic, to best gain your perception, views and opinions about service offered to you in the A&E setting.The interview will last approximately 15-30 minutes depending on your views. Should you wish to leave at any time, you may do so. You don’t need to disclose any of your details and the interviews will be kept confidential. If you have any questions, feel free to ask me, otherwise we shall begin.”     Appendix 5 Debriefing speech “I would like to thank you for taking part in my research.The findings of this study will build up a framework on which to distinguish and improve the services offered to parent/carers caring for a learning disabled child and aid the health staff in an A&E hospital setting. Your participation was greatly appreciated and I would like to thank you again for your help. In case you need to contact me for further information or anything, my contact number is 07947332523 ” Appendix 6: Interview Guide/ Questionnaires: 1. What was your experience of attending the hospital with your child? 2. What is your child’s specific learning disability? 3. What information did you get about your child’s illness? 4. What did you think about the facilities available for you and your child? 5. What was your relationship between you and the staff that looked after you/your child? 6. What do you believe were the staffs’ strong points in handling your particular situation? 7. What do you believe were the shortcomings of the staff in handling your particular situation? 8. Could you suggest a few aspects you would like to see improved? 9. What do you think about having the opportunity to share your views and opinions? 10. Is there anything else we missed that you would like to share about your experience in the A&E hospital setting? Read More